Terms and Conditions
Effective Date: 4/2/2025
Welcome to Open Impacts. By accessing our website and services, you agree to these Terms and Conditions (Terms). Please read them carefully before using our platform.
1. Acceptance of Terms
By using Open Impacts’ website and services, you acknowledge that you have read, understood, and agreed to be bound by these Terms. Agreement to these terms is a prerequisite for account formation and for the utilization of any Open Impacts resources. These Terms constitute a legally binding agreement between you and Open Impacts. We recommend that you review them periodically, as they may be updated or modified from time to time.
2. Purpose of the Platform
Open Impacts is a platform that allows cancer patients to anonymously share information relating to their treatment, experiences, and care to provide insights on treatment efficacy, safety, and impacts to quality of life. Our goal is to empower patients by providing access to rapidly emerging real-world data to help facilitate unbiased and informed patient-directed decision making. In addition to assisting patients, Open Impacts aims to promote the development, adoption, and utilization of the most effective treatments through innovative research and collaboration with academic, medical, and commercial partners.
3. Eligibility
To use Open Impacts’ services, you must be at least 18 years old or have parental/guardian consent. By using our platform, you represent that you meet these eligibility requirements. If you are providing information on behalf of someone else, you must have their explicit consent and act in accordance with applicable laws regarding data privacy and consent.
4. Data Collection and Handling
4.1 User-Provided Data
When participating in surveys, you may provide information relating to your diagnosis, treatment, side effects, or overall quality of life. This information is a critical resource for helping to generate meaningful insights for patients, healthcare professionals, and researchers. By submitting this data, you attest that to the best of your knowledge all information is accurate and indicate your consent for the use of this data.
4.2 De-Identification
Open Impacts collects personal information solely for the purposes of account verification and management. Independent platforms that do not contain any personally identifying information are utilized to collect and store all health-related information. All information will be fully deidentified prior to data analysis, inclusion in datasets, or use in any other research materials.
4.3 Data Usage
Data is at the core of Open Impacts’ mission to provide cancer patients with the most up-to-date and unbiased information on cancer treatments and resources. The primary usage of Open Impacts’ data is to provide the Open Impacts community with insights on treatment efficacy, safety, and impacts to quality of life. Other areas of research are likely to include: identification of optimal treatment locations for different cancer types, treatment cancer subtype analysis, regional variations in cancer subtypes, cancer stage and treatment efficacy, and characterization of long-term survivor behaviors. Open Impacts cannot anticipate or outline every possible use of deidentified datasets. By using Open Impacts, you acknowledge that data may be utilized for analyses outside of those listed here.
5. Privacy and Security
5.1 Privacy Policy
Your use of Open Impacts is also governed by our Privacy Policy, which provides detailed information on how we collect, store, and protect your data. We encourage you to read our Privacy Policy to fully understand your rights and choices regarding your personal information.
5.2 Data Protection
We implement robust security measures, including encryption and access controls to safeguard your data. However, no system is completely secure. By using Open Impacts, you acknowledge and accept the risks associated with online data transmission.
6. User Responsibilities
6.1 Accurate Information
You agree to provide truthful and accurate information in surveys, as misleading data can negatively impact research and insights generated by the platform.
6.2 Respectful Use
You will not use Open Impacts’ platform to post harmful, offensive, illegal, or misleading content. We reserve the right to remove any content that violates these standards.
6.3 Compliance
You agree to comply with all applicable laws and regulations while using Open Impacts’. Any unauthorized or unethical use of the platform may result in the termination of access.
7. Intellectual Property
All content, trademarks, logos, and materials on Open Impacts’ website, including text, graphics, research reports, and data, are owned by Open Impacts’ or its licensors. You may not use, copy, reproduce, modify, distribute, or transmit our content without explicit written permission. Unauthorized use of our intellectual property may result in legal action.
8. Limitation of Liability
Open Impacts provides information to users for educational and research purposes only. We do not offer medical advice, diagnosis, or treatment recommendations. The platform should not be used as a substitute for professional healthcare consultation. While Open Impacts strives to ensure the accuracy of all information present on our site, independent research findings and input from patients cannot be verified with certainty. Users should always consult a qualified healthcare provider for medical guidance. Open Impacts is not liable for any decisions made based on the information provided on our platform.
9. Third-Party Sharing
In order to help keep Open Impacts’ services free to patients and to increase the potential research benefit of the Open Impacts network, de-identified data may be shared with healthcare professionals, researchers, policymakers, or other third parties. Potential uses of this data include the evaluation of cancer treatment outcomes, refining treatment strategies, market research, drug development, or patient support. Personally identifiable data will never be shared, sold, or used without your explicit consent. Open Impacts cannot anticipate every possible use of deidentified datasets. By using Open Impacts, you acknowledge that data may be utilized for analyses outside of those listed here.
10. Modifications to Terms
We reserve the right to modify these Terms at any time. Any changes will be posted on our website, and the “Last Updated” date will be revised accordingly. Continued use of our platform after updates constitutes acceptance of the new Terms. If you do not agree with the modified Terms, you must discontinue use of our services and request data removal.
11. Termination of Use
We reserve the right to suspend or terminate access to our platform for any user violating these Terms. If you wish to discontinue use of Open Impacts, you may delete your account at any time by visiting the account settings.
12. Governing Law
These Terms are governed by the laws of Missouri. Any disputes arising from these Terms shall be resolved in the appropriate courts of that jurisdiction.
13. Contact Information
If you have any questions about these Terms, please contact us at support@openimpacts.com.
By using Open Impacts, you acknowledge and agree to these Terms and Conditions. Thank you for being a part of our community and contributing to meaningful cancer research!
