Privacy Policy
Effective Date: 4/2/2025
Open Impacts is committed to protecting the privacy of all of its members. This Privacy Policy explains how we collect, use, disclose, and protect your information. By using this website, you consent to the terms of this Privacy Policy.
1. Information We Collect
We may collect the following types of information when you use our website:
- Non-Personal Information: IP address, browser type, operating system, and other technical details. Usage data, such as pages visited and time spent on the website. Cookies and other technologies (e.g. Google Analytics) for functionality and website performance.
- Personal Information: Name, Date of Birth, Biological Sex, Email address, & other personal or treatment information disclosed as part of treatment outcome surveys.
- Sensitive Health Information: Health details shared voluntarily in any surveys or comments. All patients are encouraged to anonymize all information they choose to share and to always omit personal details from comments or correspondences for privacy purposes. All health information is collected and stored in a de-identified manner.
2. How Information Is Used
Data is at the core of Open Impacts’ mission to provide cancer patients with the most up-to-date and unbiased information on cancer treatments and resources. The primary usage of Open Impacts’ data is to provide the community with shared insights into treatment efficacy, safety, and impacts to quality of life. Information collected may also be utilized to facilitate cancer research efforts. Example research topics include but are not limited to cancer treatment outcomes, side effect severity, side effect frequency, hospital performance, treatment utilization patterns, and characteristics of long-term survivors. Information may also be used to improve website functionality, user experience, and patient outreach.
3. Sharing of Information
Personally identifiable data will never be shared, sold, or used without your explicit consent. In order to maximize the impact of research insights and to help keep Open Impacts’ services free for patients, de-identified data may be shared with healthcare professionals, researchers, policymakers, or other third parties. Information may only be shared under the following circumstances:
- Deidentified Data: We may de-identify for use in secondary research performed by external parties. Example use cases for this data include the evaluation of cancer treatment outcomes, refining treatment strategies, evaluating hospital performance, market research, drug development, or patient support.
- Service Providers: Third-party vendors who help us operate the website (e.g., hosting services) and are contractually obligated to protect your data.
- Legal Obligations: To comply with applicable laws, regulations, or court orders.
4. Your Control Over Your Information
You can edit or delete your account at any time by accessing your profile settings. If you wish to remove all of your account data from our system, please contact us at support@openimpacts.com with an email title of “Remove Account Data”.
5. Cookies and Tracking Technologies
We use cookies and similar technologies to enhance user experience and monitor website performance. You can disable cookies in your browser settings, although this may affect certain features of the site.
6. Data Security
All health and survey information is encrypted at rest and in transit to protect data from unauthorized disclosure. Data is exclusively stored in a de-identified Rigorous role-based access controls are utilized to limit data availability exclusively to essential personnel. Regional server data isolation is also utilized to reduce risk through network and operational isolation. Account access is further protected using single sign-on (SSO) with SAML 2.0 and multi-factor authentication (MFA). Despite every effort to prevent data breaches, we recognize that no system can ever be 100% secure. By using Open Impacts, you acknowledge and accept the risks associated with online data transmission.
7. Third-Party Links
Our website may contain links to third-party sites. While Open Impacts seeks to prioritize collaborations with organizations that maintain the highest level of security, we are not responsible for the privacy practices or content of any external websites.
8. Children’s Privacy
Our website is not intended for children under the age of 18. We do not knowingly collect personal information from minors. If you believe a child has provided us with information, please contact us immediately.
9. Changes to This Privacy Policy
We may update this Privacy Policy from time to time. Any changes will be posted on this page, and the “Effective Date” will be updated accordingly.
10. Contact Us
If you have any questions, concerns, or requests related to this Privacy Policy, please contact us at: support@openimpacts.com
By using openimpacts.com, you agree to the terms outlined in this Privacy Policy. Thank you for helping us build a supportive and empowering community for all cancer patients.
